Program targets Latino families

November 30, 2010 by cpehrson

For the past four years, Latino parents of children with special health care needs have been working directly with professional trainees from the URLEND program, learning more about the medical needs of their children.

The URLEND, (Utah Regional Leadership Education in Neurodevelopmental Disabilities) program has provided an opportunity for their trainees to meet regularly with a group of Spanish speaking parents at a medical clinic that provides care to underserved women and children with special health care needs.  The parent support group meets to be instructed and receive information about many areas related to living with a child with special health care needs. URLEND trainees share information in their area of professional medical expertise.

The South Main Clinic is located in the central part of Salt Lake City.  A substantial number of families seen at this clinic speak no English, Spanish being the most common language. URLEND trainees have an opportunity to work directly with these families in their own environment , presenting all materials in Spanish. An interpreter facilitates communication between the trainees and the parents when needed.

Both trainees and parents benefit from these meetings.  Parents gain a greater understanding of their child’s medical condition and can receive direct answers to their medical questions in their own language.  Trainees gain an understanding of the cultural and language barriers that many Latino families face and learn how important it is to remove those barriers in order to improve health care services.

URLEND trainees have presented on a variety of topics, including language development, hearing, genetics, dental, nutrition, speech therapy, occupational therapy, autism, and Down syndrome.

URLEND educates and prepares professional trainees to become leaders in maternal and child health to improve the systems of service in state departments of health and other health care professions.

URLEND is a multi-state collaborative program with the Utah State University-Center for Persons with Disabilities (CPD); the University of Utah-Medical Center-Department of Pediatrics; the Utah Department of Health-Children with Special Health Care Needs (CSHCN) Bureau; Utah Family Voices; Primary Children’s Medical Center; the UCEDD’s Family Voices, and CSHCN programs in ID, MT, ND, WY, and UT.

Note: This is the sixth in a series of blog posts summarizing presentations made by CPD staff members in late October and early November. They attended the 2010 conference for the Association of University Centers on Developmental Disabilities. Those of you who can stop by our building can check out the research posters in the hallway leading to the CPD’s southwest door.

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CPD Legacy Story: Nancy Dold, URLEND Trainee

June 21, 2010 by cpehrson

This CPD Legacy Story is from Nancy Dold, a 2009-2010 student of the Utah Regional Leadership Education in Neurodevelopmental Disabilities/Infant and Pediatric Audiology (URLEND/IPA) program.

The URLEND program is a multi-state collaborative CPD program that provides training to advanced standing trainees in health care and prepares them to become leaders in the Maternal and Child Health Care field.  The IPA offers additional training in the field of pediatric audiology.

Nancy Dold, URLEND Trainee

My name is Nancy Dold and I am currently an assistant professor at the University of Montana in the Communicative Sciences and Disorders (CSD) department.

This past year, I participated in the 2009-2010 URLEND training program and it has enriched both my work and personal life in many ways.

Most importantly, the enrichment grew from interconnections made with the staff and coordinators of the URLEND program as well as other trainees.  These interconnections were specifically cemented with face-to-face contact through attending the initial orientation, clinics, and conferences during the year.  It was during these face-to-face interactions that I was able to really get to know people and appreciate a variety of perspectives.

The URLEND Leadership project assignment provided another way that face-to-face interactions benefited me.  Three of us were assigned to complete a final project. After working together, I appreciate the dynamics of our group and we all formed a very strong professional and personal bond.  For this project, our development of interpersonal connections was more important than a publishable end-product.  I know that, although these two other people live in two other states, I can call on either one of these people for information or advice, either professionally or personally.  Our growth in coming to an individual and collective understanding, was immeasurable.

The URLEND staff offered me opportunities that I would not have considered on my own.  I would not have taken time off work to attend conferences or clinics, but the support staff made the travel and accommodation arrangements very easy.

There were so many URLEND lectures which I would like to commend – the audiology and the autism lectures in particular; however, I will choose just one for comment.  The lecture on writing grants had a huge impact on me.  What I learned was the necessity for ‘exactness’ to meet a rubric, while still maintaining room for negotiation and creativity.  The lessons learned from this lecture will inform my future writings.

I salute the staff of the URLEND program.  The training requirements were rigorous, but worth it.  If I could change anything during the year, I would change my circumstances.  Working on a doctorate, and writing and teaching a new class while being involved in the URLEND program was exhausting, but I am grateful for what I consider a fortuitous experience.

Finally, I am wondering how I can maintain my connections and involvement with URLEND and how, through these continuing connections, I can make a difference with the leadership skills I have gleaned through URLEND participation.

I thank all of the staff for the opportunity to participate this year and I am grateful for the sharing of ideas and knowledge not only from the staff but from the other trainees.

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