This month’s Consumer Advisory Council (CAC) blog is by Matthew Bone, a family advocate CAC member.

A dad’s opportunity to brag…

My daughter who, without regard to having a genetic skin condition, decided to study theater and recently won an award in a national competition.

Kirstin Bone

For me, that is not of significant importance.  What is important is that, in spite of a disability that would prevent many people from even trying to pursue a career in theater, and in spite of a lack of encouragement from some of her associates, and outright discouragement from others, she has continued to do what she likes and what makes her happy.  She has very clear goals, and has set in her mind how she defines success. She is accomplishing her goals, and being very successful.

Because of the award she won, many universities are encouraging her to pursue her master’s degree with them. Not bad considering many people felt she would never be able to get her bachelors in the field of
theater with her disability.

I am hoping from this you will take the message that it does not matter what your disability is, you can accomplish things that other people cannot comprehend. While they see your limitations, you know
your potential. Don’t let the limitations they see stand in your way.

The members of the Consumer Advisory Council would like to wish all of you a Happy Holiday season, and a wonderful New Year!

It all started back in 1997 when I first learned to be a self-advocate and learned to speak up for myself. It really made a big difference for me.  From then on I became a stronger self-advocate and got involved in serving on boards as well as serving on councils and committees, where I think I have made a huge difference. I am now the new Chair of the CAC at the CPD and have also been chair, vice-chair and treasurer for some other organizations.

I have become a local and national speaker, as well as made a video and gotten involved in legislative advocacy.   I have gone to Washington DC many times and talked to local representatives. Locally, I did the same in Utah, as well as testifying on disability related issues which has  helped projects to get done.

I formed my own  support team, and have lived on my own for a while and hope to again sometime. There were times I faced challenges, but got over them. Advocating for a better future for people with disabilities is what it’s all about.

I am still going strong today after 13 years of advocacy work that I have done. A true mile stone for me. Growing up for me was challenging at times. Again,  I met the challenges head on. I wish to thank all of my friends and family that have supported me in my efforts. I have also taught computer classes as well as designed my own webpage.  I do a lot of blogging and other things on the computer.

My encouragement for other self-advocates is that you can make a difference where you live.

Just remember that”Yes, you can do it!”

Written by Tom Brownlee/ leader advocate