FCHD seeks survey participants

September 28, 2015 by Sue Reeves

Image of man in wheelchair with children running beside him.

USU’s FCHD Department is looking for participants in a survey about quality of life for people with disabilities and their families.

A research study to understand how family quality of life and relationships are influenced by the individual with disabilities is being conducted by the Department of Family, Consumer and Human Development at Utah State University. Primary caregivers of a family member(s) with disabilities are invited to participate in this survey.

According to Myles Maxey, an FCHD doctoral student, the department is seeking input from all families with individuals with disabilities, no matter the age. At the conclusion of the survey, the primary caregiver will be asked to indicate if they and another family member are willing to participate in interviews about their experiences of having a family member(s) with disabilities.

To be eligible for the interview portion, families must have at least one sibling of the individual with disabilities that is currently 18 years of age or older. If selected for interviews, family members will be interviewed separately. Participation in the interview portion of the study is not required to complete the survey. Participation in this study and all responses, both in the survey and the interview, will be kept confidential.

The time to complete the survey is approximately 30-45 minutes. Those willing and chosen to participate in interviews should anticipate the interview lasting approximately one hour. This research is  supervised by Dr. Kathleen W. Piercy.

To participate in the survey, click here. 

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Disability rights: What’s with the hat?

September 23, 2015 by Sue Reeves

Image of the signing of the ADA

Justin Dart, in cowboy hat at right, at the signing of the Americans with Disabilities Act in 1990.

You may be wondering why we chose a cowboy hat as the icon of Disability Rights Week, planned for Oct. 5-9 and hosted by the Center for Persons with Disabilities, the Disability Resource Center, and the Utah State University Students Association. The hat is iconic in the disability rights movement, because of the efforts of Justin Dart, Jr., who was frequently photographed wearing one.

Dart, who was at President George H.W. Bush’s side on the podium when Bush signed the Americans with Disabilities Act in 1990, died in 2002, but his influence is still felt today. He was an entrepreneur, an advocate and the recipient of numerous awards, including the Presidential Medal of Freedom, the highest honor a civilian can receive. His obituary is reprinted below, and makes for fascinating reading, whether you are a history buff, a disability rights advocate, or an average Joe wondering how  you can make a difference.

*****

June 22, 2002

By Fred Fay and Fred Pelka, written at Justin Dart’s request.

Justin Dart, Jr., a leader of the international disability rights movement and a renowned human rights activist, died last night at his home in Washington D.C. Widely recognized as “the father of the Americans with Disabilities Act” and “the godfather of the disability rights movement,” Dart had for the past several years struggled with the complications of post-polio syndrome and congestive heart failure. He was seventy-one years old. He is survived by his wife Yoshiko, their extended family of foster children, his many friends and colleagues, and millions of disability and human rights activists all over the world.

Dart was a leader in the disability rights movement for three decades, and an advocate for the rights of women, people of color, and gays and lesbians. The recipient of five presidential appointments and numerous honors, including the Hubert Humphrey Award of the Leadership Conference on Civil Rights, Dart was on the podium on the White House lawn when President George H. Bush signed the ADA into law in July 1990. Dart was also a highly successful entrepreneur, using his personal wealth to further his human rights agenda by generously contributing to organizations, candidates, and individuals, becoming what he called “a little PAC for empowerment.”

In 1998 Dart received the Presidential Medal of Freedom, the nation’s highest civilian award. “Justin Dart,” said President Clinton in 1996, “in his own way has the most Olympian spirit I believe I have ever come across.”

Until the end, Dart remained dedicated to his vision of a “revolution of empowerment.” This would be, he said, “a revolution that confronts and eliminates obsolete thoughts and systems, that focuses the full power of science and free-enterprise democracy on the systematic empowerment of every person to live his or her God-given potential.” Dart never hesitated to emphasize the assistance he received from those working with him, most especially his wife of more than thirty years, Yoshiko Saji.
“She is,” he often said, “quite simply the most magnificent human being I have ever met.”

Time and again Dart stressed that his achievements were only possible with the help of hundreds of activists, colleagues, and friends. “There is nothing I have achieved, and no addiction I have overcome, without the love and support of specific individuals who reached out to empower me…
There is nothing I have accomplished without reaching out to empower others.” Dart protested the fact that he and only three other disability activists were on the podium when President Bush signed the ADA, believing that “hundreds of others should have been there as well.” After receiving the Presidential Medal of Freedom, Dart sent out replicas of the award to hundreds of disability rights activists across the country, writing that, “this award belongs to you.”

Justin Dart, Jr., was born on August 29, 1930, into a wealthy and prominent family. His grandfather was the founder of the Walgreen Drugstore chain, his father a successful business executive, his mother a matron of the American avant garde. Dart would later describe how he became “a super loser” as a way of establishing his own identity in this family of “super winners.” He attended seven high schools, not graduating from any of them, and broke Humphrey Bogart’s all-time record for the number of demerits earned by a student at elite Andover prep. “People didn’t like me. I didn’t like myself.”

Dart contracted polio in 1948. With doctors saying he had less than three days to live, he was admitted into the Seventh Day Adventist Medical University in Los Angeles. “For the first time in my life I was surrounded by people who were openly expressing love for each other, and for me, even though I was hostile to them. And so I started smiling at people, and saying nice things to them. And they responded, treating me even better.
It felt so good!” Three days turned into forty years, but Dart never forgot this lesson. Polio left Dart a wheelchair user, but he never grieved about this. “I count the good days in my life from the time I got polio. These beautiful people not only saved my life, they made it worth saving.”

Another turning point was Dart’s discovery in 1949 of the philosophy of Mohandas K. Gandhi. Dart defined Gandhi’s message as, “Find your own truth, and then live it.” This theme too would stay with him for the rest of his life. Dart attended the University of Houston from 1951 to 1954, earning his bachelor’s and master’s degrees in political science and history. He wanted to be a teacher, but the university withheld his teaching certificate because he was a wheelchair user. During his time in college, Dart organized his first human rights group — a pro-integration student group at what was then a whites-only institution.

Dart went into business in 1956, building several successful companies in Mexico and Japan. He started Japan Tupperware with three employees in 1963, and by 1965 it had expanded to some 25,000. Dart used his businesses to provide work for women and people with disabilities. In Japan, for example, he took severely disabled people out of institutions, gave them paying jobs within his company, and organized some of them into Japan’s first wheelchair basketball team. It was during this time he met his wife, Yoshiko.

The final turning point in Dart’s life came during a visit to Vietnam in 1966, to investigate the status of rehabilitation in that war-torn country. Visiting a “rehabilitation center” for children with polio, Dart instead found squalid conditions where disabled children were left on concrete floors to starve. One child, a young girl dying there before him, took his hand and looked into his eyes. “That scene,” he would later write, “is burned forever in my soul. For the first time in my life I understood the reality of evil, and that I was a part of that reality.”

The Darts returned to Japan, but terminated their business interests.
After a period of meditation in a dilapidated farmhouse, the two decided to dedicate themselves entirely to the cause of human and disability rights. They moved to Texas in 1974, and immersed themselves in local disability activism. From 1980 to 1985, Dart was a member, and then chair, of the Texas Governor’s Committee for Persons with Disabilities.
His work in Texas became a pattern for what was to follow: extensive meetings with the grassroots, followed by a call for the radical empowerment of people with disabilities, followed by tireless advocacy until victory was won.

In 1981, President Ronald Reagan appointed Dart to be the vice-chair of the National Council on Disability. The Darts embarked on a nationwide tour, at their own expense, meeting with activists in every state. Dart and others on the Council drafted a national policy that called for national civil rights legislation to end the centuries old discrimination of people with disabilities — what would eventually become the Americans with Disabilities Act of 1990.

In 1986, Dart was appointed to head the Rehabilitation Services Administration, a $3 billion federal agency that oversees a vast array of programs for disabled people. Dart called for radical changes, and for including people with disabilities in every aspect of designing, implementing, and monitoring rehabilitation programs. Resisted by the bureaucracy, Dart dropped a bombshell when he testified at a public hearing before Congress that the RSA was “a vast, inflexible federal system which, like the society it represents, still contains a significant portion of individuals who have not yet overcome obsolete, paternalistic attitudes about disability.” Dart was asked to resign his position, but remained a supporter of both Presidents Reagan and Bush. In 1989, Dart was appointed chair of the President’s Committee on the Employment of People with Disabilities, shifting its focus from its traditional stance of urging business to “hire the handicapped” to advocating for full civil rights for people with disabilities.

Dart is best known for his work in passing the Americans with Disabilities Act. In 1988, he was appointed, along with parents’ advocate Elizabeth Boggs, to chair the Congressional Task Force on the Rights and Empowerment of Americans with Disabilities. The Darts again toured the country at their own expense, visiting every state, Puerto Rico, Guam, and the District of Columbia, holding public forums attended by more than 30,000 people. Everywhere he went, Dart touted the ADA as “the civil rights act of the future.” Dart also met extensively with members of Congress and staff, as well as President Bush, Vice President Quayle, and members of the Cabinet. At one point, seeing Dart at a White House reception, President Bush introduced him as “the ADA man.” The ADA was signed into law on July 26, 1990, an anniversary that is celebrated each year by “disability pride” events all across the country.

While taking pride in passage of the ADA, Dart was always quick to list all the others who shared in the struggle: Robert Silverstein and Robert Burgdorf, Patrisha Wright and Tony Coelho, Fred Fay and Judith Heumann, among many others. And Dart never wavered in his commitment to disability solidarity, insisting that all people with disabilities be protected by the law and included in the coalition to pass it — including mentally ill “psychiatric survivors” and people with HIV/AIDS. Dart called this his “politics of inclusion,” a companion to his “politics of principle, solidarity, and love.”

After passage of the ADA, Dart threw his energy into the fight for universal health care, again campaigning across the country, and often speaking from the same podium as President and Mrs. Clinton. With the defeat of universal health care, Dart was among the first to identify the coming backlash against disability rights. He resigned all his positions to become “a full-time citizen soldier in the trenches of justice.” With the conservative Republican victory in Congress in 1994, followed by calls to amend or even repeal the ADA and the Individuals with Disabilities Education Act (or IDEA), Dart, and disability rights advocates Becky Ogle and Frederick Fay, founded Justice for All, what Dart called “a SWAT team” to beat back these attacks. Again, Dart was tireless — traveling, speaking, testifying, holding conference calls, presiding over meetings, calling the media on its distortions of the ADA, and flooding the country with American flag stickers that said, “ADA, IDEA, America Wins.” Both laws were saved. Dart again placed the credit with “the thousands of grassroots patriots” who wrote and e-mailed and lobbied. But there can be no doubt that without Dart’s leadership, the outcome might have been entirely different.

In 1996, confronted by a Republican Party calling for “a retreat from Thomas Jefferson, Abraham Lincoln democracy,” Dart campaigned for the re-election of President Clinton. This was a personally difficult “decision of conscience.” Dart had been a Republican for most of his life, and had organized the disability constituency campaigns of both Ronald Reagan and George Bush, campaigning against Clinton in 1992. But in a turnabout that was reported in the New York Times and the Washington Post, Dart went all out for Clinton, even speaking at the Democratic National Convention in Chicago. The Darts yet again undertook a whirlwind tour of the country, telling people to “get into politics as if your life depended on it. It does.” At his speech the day after the election, President Clinton publicly thanked Dart for personally campaigning in all fifty states, and cited his efforts as “one reason we won some of those states.”

Dart suffered a series of heart attacks in late 1997, which curtailed his ability to travel. He continued, however, to lobby for the rights of people with disabilities, and attended numerous events, rallies, demonstrations and public hearings. Toward the end of his life, Dart was hard at work on a political manifesto that would outline his vision of “the revolution of empowerment.” In its conclusion, he urged his “Beloved colleagues in struggle, listen to the heart of this old soldier. Our lives, our children’s lives, the quality of the lives of billions in future generations hangs in the balance. I cry out to you from the depths of my being. Humanity needs you! Lead! Lead! Lead the revolution of empowerment!”

Today, disabled people across the country and around the world will grieve at the passing of Justin Dart, Jr. But we will celebrate his love and his commitment to justice. Please join us at in expressing our condolences to Yoshiko and her family during this difficult time. Keep in mind, however, that it was Justin’s wish that any service or commemoration be used by activists to celebrate our movement, and as an opportunity to recommit themselves to “the revolution of empowerment.”

Statement from Justin Dart, read at his funeral:

Dearly Beloved:

Listen to the heart of this old soldier. As with all of us the time comes when body and mind are battered and weary. But I do not go quietly into the night. I do not give up struggling to be a responsible contributor to the sacred continuum of human life. I do not give up struggling to overcome my weakness, to conform my life – and that part of my life called death – to the great values of the human dream.

Death is not a tragedy. It is not an evil from which we must escape. Death is as natural as birth. Like childbirth, death is often a time of fear and pain, but also of profound beauty, of celebration of the mystery and majesty which is life pushing its horizons toward oneness with the truth of mother universe. The days of dying carry a special responsibility. There is a great potential to communicate values in a uniquely powerful way – the person who dies demonstrating for civil rights.

Let my final actions thunder of love, solidarity, protest – of empowerment.

I adamantly protest the richest culture in the history of the world, a culture which has the obvious potential to create a golden age of science and democracy dedicated to maximizing the quality of life of every person, but which still squanders the majority of its human and physical capital on modern versions of primitive symbols of power and prestige.

I adamantly protest the richest culture in the history of the world which still incarcerates millions of humans with and without disabilities in barbaric institutions, backrooms and worse, windowless cells of oppressive perceptions, for the lack of the most elementary empowerment supports.

I call for solidarity among all who love justice, all who love life, to create a revolution that will empower every single human being to govern his or her life, to govern the society and to be fully productive of life quality for self and for all.

I do so love all the patriots of this and every nation who have fought and sacrificed to bring us to the threshold of this beautiful human dream. I do so love America the beautiful and our wild, creative, beautiful people. I do so love you, my beautiful colleagues in the disability and civil rights movement.

My relationship with Yoshiko Dart includes, but also transcends, love as the word is normally defined. She is my wife, my partner, my mentor, my leader and my inspiration to believe that the human dream can live. She is the greatest human being I ever known.

Yoshiko, beloved colleagues, I am the luckiest man in the world to have been associated with you. Thanks to you, I die free. Thanks to you, I die in the joy of struggle. Thanks to you, I die in the beautiful belief that the revolution of empowerment will go on. I love you so much. I’m with you always. Lead on! Lead on!

Justin Dart

(Reprinted from www.disabilityhistory.org)

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CAC Corner: A disability-related resource list

September 21, 2015 by Sue Reeves

By Gordon Richins, CPD Consumer Advocate

In the old paradigm of disability, individuals with disabilities were thought to be broken and need to be fixed by the medical field.

In the new paradigm of disability, individuals with disabilities are not broken, it is the systems and the environments that are broken and need to be fixed so individuals with disabilities can be included in all aspects of life.

Here are some resources and web sites that may be helpful to individuals with disabilities and their families.

*****

Names to know:

sticker2Justin Dart was one of the key disability leaders, considered father of the Americans with Disability Act, winner of the Presidential Medal of Freedom (the highest USA civilian award). Justin Dart was also a very strong supporter and advocate for the Independent Living Movement.

http://www.independentliving.org/column/stone200102.html

http://www.thecccoalition.org/justin-dart-jr-on-disability-employment-empowerment-and-productivity/

Ed Roberts is one of the most important pioneers of the disability rights movement. Besides his advocacy for educational rights, Roberts was a founder of the Independent Living (IL) movement and director of Vocational Rehabilitation (VR) in California.

http://www.ed.gov/blog/2014/03/celebrating-a-disability-rights-pioneer/

Independent Living

National Council on Independent Living

APRIL: Association of Programs for Rural Independent Living

ILRU: Independent Living Research Utilization founded in 1977, has a long history of providing research, education and consultation in the areas of independent living, the Americans with Disabilities Act, home and community-based services and health issues for people with disabilities.

RapidCourses is a free, self-paced learning option, fully accessible (508 compliant) and available 24/7, allowing you to “Learn at the Speed of YOU!” This web-based, user-friendly curriculum is easy to navigate and is designed to provide essential, fundamental knowledge of the independent living field.

http://independentlivingideal.blogspot.com/p/principles-of-independent-living.html

Utah-specific Resources

Bear River Mobility Management

Center for Persons with Disabilities at Utah State University

Developmental Skills Laboratory (DSL)

Utah Assistive Technology Program (UATP)

OPTIONS for Independence

Cache Employment and Training Center

Cache Valley Adult Day Center

Rocky Mountain ADA Center

Utah Parent Center

Utah Developmental Disabilities Council UDDS

Disability Law Center

Utah State Office of Rehabilitation (VR)

Division of Workforce Services

Division of Services for People with Disabilities (DSPD) 

 

USU Disability Resource Center

 

 

CReATE matches its own record

September 18, 2015 by Sue Reeves

By Talia Pratte

Image of mobility devices.

Refurbished mobility devices await new homes in the CReATE warehouse.

Citizens Reusing Assistive Technology (CReATE), matched its record of placing 15 mobility devices during the month of August. CReATE gives used power wheelchairs, manual wheelchairs and power scooters new life. The reutilization of mobility devices keeps them out of landfills and out in the community, improving the lives of people with disabilities.

Led by Thomas Boman, the Program Director, CReATE accepts donations of used mobility devices and keeps them at its facility in Salt Lake City.

Before starting at CReATE two years ago, Boman worked as a safety engineer for 12 years.

“I had an injury to my balance nerve, so I had to reassess my life,” Boman said. “It gave me an appreciation for what some of these folks go through.”

In an average month, CReATE places 12.5 refurbished mobility devices, Boman said. In August, the program matched its record of 15, with even less work time than usual.

“Here’s the cool thing,” Boman said. “We actually shut down for a week to clean and organize, and we still met that record.”

When someone inquires about a mobility device, they are evaluated to see if CReATE has a mobility device in its inventory that can meet the consumer’s needs. CReATE does not sell mobility devices, but there is a fee that covers the cost of labor to refurbish each device and the new batteries.

A new power wheelchair from another source can cost anywhere from $2,500 to $35,000.

“Anything electric is $250, and then the battery cost would be in addition to the $250,” Boman said. “The average cost is between $350 and $560.”

This service allows for many consumers to receive mobility devices they otherwise couldn’t afford and saves those in need thousands of dollars.

The services CReATE provides are possible because of the staff, volunteers and donations.

“One of the constants in CReATE is the influx of donations,” Boman said.

About 20 mobility devices are donated every month and there is always a need for more, he said. Donations are usually tax-deductable.

In the future, Boman sees CReATE providing even more devices every month, thanks in part to five regular volunteers who help refurbish the mobility devices. Volunteers are always needed and welcomed at CReATE.

“By the end of this year, I’d like to hit 20 a month” he said. “Especially with the returning volunteers, they’re getting a lot more skills and if we get additional volunteers, I think we could do that.”

To inquire about inventory, e-mail tamara.wulle@usu.edu. To inquire about devices or donations, call (801) 887-9398.

CReATE is part of the Utah Assistive Technology Program, housed at Utah State University’s Center for Persons with Disabilities.

Disability Rights Week coming Oct. 5-8

September 16, 2015 by Sue Reeves

Image of DRW logoTo celebrate the 25th anniversary of the signing of the Americans with Disabilities Act, the Center for Persons with Disabilities at Utah State University will present its inaugural Disability Rights Week Oct. 5-8. The week-long celebration is co-sponsored by the Disability Resource Center and USUSA, and includes an information fair, birthday cake and a free comedy show.

Justin Dart’s cowboy hat is being used as the iconic image for this year’s event. Dart is remembered as “the father of the ADA,” and he was famously photographed with President George H.W. Bush, and the hat, at the ADA signing.

“Disability rights are civil rights,” said Shane Johnson, associate director of development at the CPD and one of the event organizers. “Twenty percent of the population of Utah identifies as having a disability, so chances are good that every person on this campus either has a disability or has a friend or family member with a disability.

“The 25th anniversary of the Americans with Disabilities Act occurred in July, but we wanted to wait until more people were on campus to commemorate the event,” Johnson said. “We have some fantastic events planned.”

The week begins with yard signs marking the accessible features of the USU campus—curb cuts, automatic door openers, elevators, etc., and a window display at the Campus Store.

On Thursday, Oct. 8, an information fair will be held at the TSC in the Sunburst and International Lounges from 9 a.m. to 5 p.m. “Lives Worth Living,” a documentary about the disability rights movement that led to the ADA, will run on a continuous loop, and the CPD’s disability history posters will be on display. Visitors to the information fair will be treated to birthday cake from 11 a.m. to 2 p.m. in celebration of the ADA. This is an Aggie Passport event, so come and get your passport stamped!

On Friday, Oct. 9, America’s Got Talent runner-up Drew Lynch and his partner Sam Conroe will make you laugh in the Sunburst Lounge at 6 p.m. This is a FREE event and open to the public.

In addition, there will be displays by campus and community partners including the DRC, USUSA, Common Ground Outdoor Adventures, AgrAbility, Options for Independence, Up to 3 Early Intervention, the Interdisciplinary Disability Awareness and Service Learning class, Aggies Elevated, Utah Assistive Technology Project, the National Federation for the Blind, WebAIM, the Emma Eccles Jones College of Education and Human Services, Special Olympics/Best Buddies, the Disability Law Center, the Counseling and Psychological Services office and the National Alliance on Mental Illness.

Watch the blog and the CPD Facebook page for additional details.