
Phoenix Barfuss
Recently we posted a feature on the Assistive Technology Lab’s work to put a two-year-old girl with muscular dystrophy into a wheelchair that fits her. Assistive Technology Lab Coordinator Stan Clelland discussed this and other work done at the Assistive Technology Lab here at the CPD during a radio interview with Craig Hislop of KVNU radio. It aired on the “For the People” program on KVNU News/Talk 610 on June 8.
A link to the interview appears below. You can also scroll down and read the transcript.
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Transcription – Stan Clelland and Craig Hislop
Craig: Phoenix Barfuss is a little two-year old with muscular dystrophy and she is now going to be able to be a little more independent and explore her surroundings, because of a wheelchair that is just her size. A local assistive technology lab is customizing this wheelchair for Phoenix and her specific needs. We thought this was a great story and we’ve got Stan Clelland, who is on the line. This is at the Assistive Technology Lab up at Utah State University. So this is the kind of work you folks do up there for a lot of people I guess Stan?
Stan: Yes. That’s pretty much on a daily process for us, is we try to make people independent. We find people out there who have needs, one of a kind type needs, and we try to make modifications or things to simple little things of daily living and like the wheelchair for Phoenix and we modify it so that she can have a little more independence in her life.
Craig: I think as I understand it now, your specialty seems to be, for instance there was a story about the Shriners’ Hospital donating surplus wheelchairs and things to you and I guess you then take those kinds of resources and put them together for specific needs?
Stan: Correct, and that’s exactly where Phoenix’s chair came from. The fine folks down at Shriners’ they gave us some carcasses, if you will, of some of these chairs, manual wheelchairs and such and we bring them up here and we train students and we use students up here to put together pieces and parts – good pieces and parts together off of several different chairs and make one good chair out of it. So it’s a recycling program, if you will, but it also benefits people like Phoenix and then the chair gets, after it’s kind of been recycled, if you will, and put back together with all these parts from here and parts from there, it makes her life more free and independent and then it’s a win-win-win really. We get the satisfaction of helping people, Phoenix gets the chair, and the students get a great education out of the whole deal.
Craig: So if I were to walk into your Lab at any given time, I’d probably find excess parts and things all over the place?
Stan: Oh yes. The other part we do is we have a lot of students tear some of the things down and then we go through and figure out what’s good and what’s not good and then we categorize it and put it on the shelf and so then when another situation like Phoenix’s comes along, we know exactly what parts and pieces we have out there and we can put them together and make it happen for them.
Craig: How did you come to know about Phoenix? How did she find you?
Stan: That’s kind of a long story. Her folks were talking with a vendor and they said, we’ll he might be able to help you out and so Mom, Jasmine, called me and we got to talking and I went down and kind of interviewed her a little bit and we got together and then she mentioned she needed a chair for Phoenix and some mobility issues came up and that’s kind of how it all started.
Craig: You’ve talked about the students. I think as I understand it, these are students from Special Education, Communicative Disorders, and other USU programs. Do I understand this correctly, the AT Lab currently serves more than 1,000 Utahns a year?
Stan: That is correct. Over the whole year – and that’s probably an under statement, because you’re well aware of the ripple effect. As we help one individual, not only are we helping Phoenix directly, but we’re also helping her Mom and her Dad and everybody else – the people at school and so on.
Craig: So I guess as I understand it, she’ll have this wheelchair that you’ve prepared for her and at some point; the folks down at Primary Children’s also getting involved with a power wheelchair for her.
Stan: Correct. The chair we modified up here is a manual chair and the fine folks down at Primary Children’s are working with them to put together a customized power wheelchair that addresses all the needs of what Phoenix has – the issues that Phoenix has physically.
Craig: Again, this Assistive Technology Lab is an initiative of the Utah Assistive Technology Program and it is located here in Logan up on the USU campus at the Center for Persons with Disabilities. Stan Clelland is the AT Lab Coordinator. You’re just doing great work Stan and we appreciate that and you talking some time to tell us all about it.
Stan: My pleasure.