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Stan Clelland interview on KVNU Radio, Logan

June 19, 2009 by JoLynne Lyon

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Phoenix Barfuss

Recently we posted a feature on the Assistive Technology Lab’s work to put a two-year-old girl with muscular dystrophy into a wheelchair that fits her. Assistive Technology Lab Coordinator Stan Clelland discussed this and other work done at the Assistive Technology Lab here at the CPD during a radio interview with  Craig Hislop of KVNU radio. It aired on the “For the People” program on  KVNU News/Talk 610 on June 8.

A link to the interview appears below. You can also scroll down and read the transcript.

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Transcription – Stan Clelland and Craig Hislop

Craig: Phoenix Barfuss is a little two-year old with muscular dystrophy and she is now going to be able to be a little more independent and explore her surroundings, because of a wheelchair that is just her size. A local assistive technology lab is customizing this wheelchair for Phoenix and her specific needs. We thought this was a great story and we’ve got Stan Clelland, who is on the line. This is at the Assistive Technology Lab up at Utah State University. So this is the kind of work you folks do up there for a lot of people I guess Stan?

Stan: Yes. That’s pretty much on a daily process for us, is we try to make people independent. We find people out there who have needs, one of a kind type needs, and we try to make modifications or things to simple little things of daily living and like the wheelchair for Phoenix and we modify it so that she can have a little more independence in her life.

Craig: I think as I understand it now, your specialty seems to be, for instance there was a story about the Shriners’ Hospital donating surplus wheelchairs and things to you and I guess you then take those kinds of resources and put them together for specific needs?

Stan: Correct, and that’s exactly where Phoenix’s chair came from. The fine folks down at Shriners’ they gave us some carcasses, if you will, of some of these chairs, manual wheelchairs and such and we bring them up here and we train students and we use students up here to put together pieces and parts – good pieces and parts together off of several different chairs and make one good chair out of it. So it’s a recycling program, if you will, but it also benefits people like Phoenix and then the chair gets, after it’s kind of been recycled, if you will, and put back together with all these parts from here and parts from there, it makes her life more free and independent and then it’s a win-win-win really. We get the satisfaction of helping people, Phoenix gets the chair, and the students get a great education out of the whole deal.

Craig: So if I were to walk into your Lab at any given time, I’d probably find excess parts and things all over the place?

Stan: Oh yes. The other part we do is we have a lot of students tear some of the things down and then we go through and figure out what’s good and what’s not good and then we categorize it and put it on the shelf and so then when another situation like Phoenix’s comes along, we know exactly what parts and pieces we have out there and we can put them together and make it happen for them.

Craig: How did you come to know about Phoenix? How did she find you?

Stan: That’s kind of a long story. Her folks were talking with a vendor and they said, we’ll he might be able to help you out and so Mom, Jasmine, called me and we got to talking and I went down and kind of interviewed her a little bit and we got together and then she mentioned she needed a chair for Phoenix and some mobility issues came up and that’s kind of how it all started.

Craig: You’ve talked about the students. I think as I understand it, these are students from Special Education, Communicative Disorders, and other USU programs. Do I understand this correctly, the AT Lab currently serves more than 1,000 Utahns a year?

Stan: That is correct. Over the whole year – and that’s probably an under statement, because you’re well aware of the ripple effect. As we help one individual, not only are we helping Phoenix directly, but we’re also helping her Mom and her Dad and everybody else – the people at school and so on.

Craig: So I guess as I understand it, she’ll have this wheelchair that you’ve prepared for her and at some point; the folks down at Primary Children’s also getting involved with a power wheelchair for her.

Stan: Correct. The chair we modified up here is a manual chair and the fine folks down at Primary Children’s are working with them to put together a customized power wheelchair that addresses all the needs of what Phoenix has – the issues that Phoenix has physically.

Craig: Again, this Assistive Technology Lab is an initiative of the Utah Assistive Technology Program and it is located here in Logan up on the USU campus at the Center for Persons with Disabilities. Stan Clelland is the AT Lab Coordinator. You’re just doing great work Stan and we appreciate that and you talking some time to tell us all about it.

Stan: My pleasure.

Recognizing Those Who Make a Difference

June 15, 2009 by cpehrson

Do you know someone who is making a significant difference in the lives of people with disabilities in Utah?  Here is an opportunity for you to honor them.  The Utah Developmental Disabilities Council (UDDC) is seeking nominations of deserving individuals from the Utah community to be recognized by the Council during their annual meeting in September, 2009. 

 

Nominations are available in the following categories:

 Self-Advocate of the Year:  A self-advocate is a person with a developmental disability who has spoken up for themselves and others.

Volunteer of the Year:   A volunteer is someone who has been an advocate but is not being paid to do the advocacy.

Legislator of the Year:  This is an opportunity to recognize a Legislator who has been proactive for the disability community.

Parent of the Year:  This is an opportunity to recognize a parent who has been a leading advocate.

Media Representative of the Year:  This award can recognize someone who has helped spread a positive image in the news.

Educator of the Year:  This award can recognize someone’s contribution to the education of those with disabilities.

Adult Sibling of the Year:  This is a chance to recognize an adult – 18 or over –who is supporting their brother or sister with a disability. 

Child Sibling of the Year:  This is a way to recognize a sibling – 17 or younger – who has contributed to the life of their brother or sister with a disability.

Employer of the Year:  This is an opportunity to recognize an employer for employing people with developmental disabilities.

Nomination forms can be found online or you can contact the UDDC office at 1-801-533-3965 or 1-800-333-8824 to request a copy of the form.  The deadline for nominations is July 31st.  Please send nominations by regular mail, email, or fax: 

                                    Utah Developmental Disabilities Council

                                    155 South 200 West, Suite 100

                                    Salt Lake City, UT 84101

                                    Email:  bemartin@utah.gov

                                    Fax:  1-801-533-3968

 

 

 

 

 

Rocket man

June 12, 2009 by JoLynne Lyon

The rocket, named Pike, was test launched in April.

The USU students' rocket was test launched in April.

Bowen Masco works at the CPD, providing technical support for the Early Childhood Alternative Teacher Preparation program. In his other life he does rocket software. Recently he was involved in an engineering team that did something so cool, we just have to talk about it. He was on Utah State University’s 27-member rocket team when it won the grand prize in NASA’s University Student Launch Initiative competition. Again.

Bowen was one of three students who were on last year’s USU rocket team, when it won the same prize in the same competition. Both years, the team made a reusable rocket from components that cost less than $5000 and designed it to go exactly one mile up before turning and coming back to the ground. As part of the competition, they communicated with the public, wrote a report and published it on the Web. (Bowen built and maintained their website.) And their reward for winning? They were invited to watch the launch of the space shuttle Endeavor last November.

“It was incredible,” he said. “It was a night launch. We were as close as people are allowed to get. … We were looking right at the pad.”

They had the same vantage point as the press corps, three miles away. They still felt the blast from the launch. “You’re three miles away, you see the flames, and then all the sudden, whoosh!”

This year, the USU team won the same competition and will receive $5000 and another invitation to a shuttle launch at the Kennedy Space Center this fall. In addition to his work on the website, Bowen wrote software that took measurements, crunched data and opened the rocket’s flaps that slowed it down so it could hit the one-mile-up point in the sky.

“Bowen was a critical person on the team,” said Stephen A. Whitmore, faculty mentor for USU’s senior design team. “Without him we couldn’t have done what we did.”

The rocket is the subject of several YouTube videos, including one shot from a camera mounted on the rocket and another detailing the project from design to launch.

The CPD appreciates what Bowen does here, too. “I’m just really thrilled that we have someone with his capabilities,” said Marlene Deer, who directs the program where he works.

The Early Childhood Alternative Teacher Preparation Program provides distance education to prospective early childhood special education teachers. Because of the program, these students are able to work on licensing requirements from off-campus locations in rural Utah. Bowen is working on cutting-edge software that, when it is done, will allow the program’s staff to observe teachers by robotic video camera. He also provides technical support.

He will leave the CPD in a few months to focus on graduate school.

Bowen Masco

Bowen Masco

CPD conference-goers camp to cut costs

June 3, 2009 by JoLynne Lyon

Jeff Sheen and his laptop at the KOA in Missoula

Jeff Sheen and his laptop at the KOA in Missoula

When times get tough, the tough get creative.

CPD Training and Development Specialist Jeff Sheen really wanted to attend the Accessible Outdoor Recreation Areas, Programs, and Facilities workshop last month. So did CPD Research Scientist Keith Christensen. The conference would be a great place to network with potential partners and learn more about making recreation accessible to everyone. The subject interests them both.

But they did not want to spend a lot of money. Like many other organizations, the CPD and Utah State University have absorbed some serious budget cuts. The three-day conference was in Missoula, Montana, which meant two nights’ hotel stay plus travel costs. Since both men like camping, they decided it would be fun to find out just how cheaply they could travel.

They settled on the Missoula KOA campground. It had shower facilities, and at $25 a night it was a real savings over a motel. They further cut costs by taking a hybrid car from the Utah State University motor pool.

So they attended the conference, sponsored by MonTECH and the Montana Disability and Health Program at the University of Montana Rural Institute. It was well worth it, Sheen said. The campground had free wi-fi Internet, which was a real benefit since he could not find a network to log onto at the conference. He and Christensen played nine-hole miniature golf on a tiny course after hours. And the conference provided good information and great contacts. “There are some projects that are going to come out of our time there.”

“It was a fun first experience,” Christensen said. The KOA probably should not be the new standard for university travel, but in the right place and the right season, he said he’d do it again.

Some of the other conference-goers were surprised to find out the guys from USU were camping. One offered them her backyard for next time. “That’d be even cheaper,” Sheen said.

For others who might want to stay at a KOA Sheen leaves this advice: Bring a towel. The campground provides showers but no towels.

Fortunately, he was able to buy one.

CPD employee receives Student of the Year

June 1, 2009 by JoLynne Lyon

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Ross Menlove

CPD employee Ross Menlove was awarded the Janette Misaka Student Council for Exceptional Children (SCEC) Student of the Year.

Ross served on the SCEC’s state board for two years, and was Utah State University’s chapter president in the 2007/08 academic year. As this year’s  Child Advocacy Network Coordinator, he lobbied for children with disabilities in Washington, DC.

At the CPD he coordinates the Top Sports Activities program, finding volunteers who can come work with the children who participate. Forty to fifty families are involved, he said.

Working both at the center and with the SCEC has helped him provide opportunities for increasing education for children with disabilities, he said.

This spring he graduated from Utah State University with a dual major in special education and elementary education. Ross will start teaching at Sunrise Elementary in the fall. He will also continue coordinating Top Sports Activities.

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