CAC Council Minutes.

Center for Persons with Disabilities
CPD Consumer Advisory Council
January 6, 2015

In attendance: Bryce Fifield, Gordon Richins, Kelly Holt, Sara Doutre, Stephanie Mathis, Isaac Gorostieta, Adina Zahradnikova, Mary Kava, Mat Bone, Claire Mantonya, Brandi Dodd, Kim Datwyler, Sharon Weston

CAC Chair, Kelly Holt, conducted the meeting and welcomed participants. Introductions were made. Sarah Doutre was welcomed to the CAC as a new family representative. Claire Mantonya, Brandi Dodd, Mat Bone, Mary Kava, and Kim Datwyler joined the meeting by phone.

Community Investment Awards. At the last meeting, the CIF award recipient was RISE, Inc. of St. George. Through the fundraising efforts of Kim Datwyler and Gordon a successful proposal presentation was made to Cache Valley Bank for $500 funding to support for the CIF award program. Bryce and Shane are working with the bank to secure ongoing sponsorship for the CIF program. Bryce traveled to St. George to make the award presentation to the RISE organization. Sonjia Naron, a former CAC member who made the nomination, also participated in the presentation. Representatives from the St. George Branch Office of Cache Valley Bank were in attendance. The RISE staff were very grateful not only for the cash award but to be recognized for their excellent work.

A copy of the results for the current Community Investment Award was compiled and available in the agenda packet. Members of the CAC family representatives made the nominations for this cycle. Five organizations were nominated: Utah Legislative Coalition, Red Rock Center for Independence, Make a Wish Utah Foundation, Epilepsy Foundation, and Utah Autism Gives. The CAC self advocates reviewed the nominations, and voted to present the award to Utah Autism Gives. Kelly Holt expressed her thanks to the parent representatives who made the nominations and to the self advocates for their hard work in reviewing and choosing the award recipient. Bryce indicated that he will work with the CPD media staff to select a presentation date for the award. Mat Bone and Stephanie Mathis will also attend the presentation on behalf of the CAC. Others who are interested in attending are also invited. Gordon will email information about the presentation date, time, and location.

Kelly reminded participants that for the next award cycle, the CAC agency representatives will submit the nominations for the award. Gordon will email information about the procedures to CAC members.

Bryce expressed his appreciation to Kelly and Gordon for their leadership in moving the decision making process forward. He invited CAC members to provide feedback about their participation in the award process. Kelly and others commented that choosing a single winner among the nominations was difficult. All of the organizations nominated are providing exemplary services for people with disabilities. Bryce reported that professional colleagues from other programs within the AUCD network have been impressed with how our CAC has worked to develop this program and the award process.

CAC Monthly Blog – Gordon circulated a signup sheet for CAC members to choose a month for submitting an article for the CPD Blog on issues that impact people with disabilities. If you need topic ideas or help in writing, please contact Gordon. He will send reminders to blog participants. Thanks to those who have submitted blogs in the past. This provides great experience for learning to effectively communicate ideas.

Review of CPD Annual Progress Report – Mat Bone reported that the Program Committee met several weeks ago to review the CPD annual progress report. This is the second year of the CPD five-year plan. The CPD exceeded goals in all of the core function areas. They were impressed by all accomplishments reflected in the report. It was the recommendation of the Program Committee that the CAC accept the information provided in the report and commend CPD staff for the excellent work they are doing. Mary Kava made a motion that the CAC endorse the report as written. Sara Doutre seconded the motion, and it was passed unanimously by those in attendance.

Bryce explained that the formal process for the CAC to provide input is outlined in the authorizing legislation. The CAC is to provide input for developing the goals for the 5 year plan and review the annual progress towards accomplishing those goals. Bryce invited CAC members to provide him feedback on any emerging topics they feel should be addressed. Mary Kava suggested that more services, training, and dissemination be focused in the rural areas of the state. Feel free to email Bryce or Gordon with other suggestions as you think of them. Bryce encouraged participants to visit the CPD website to learn more about the current programs of the CPD that are not highlighted in the report.

Committee Reports

Bylaws Committee – The Bylaws Committee thoroughly reviewed and amended the Bylaws in the past two years. Mat made the suggestion that the CAC review them again in Year 4 prior to submission of a new 5 year plan. It was the consensus of the group that the Bylaws committee will do a formal review of the bylaws in January of next year and report back to the CAC at the June 2016 meeting. Sarah Doutre offered to serve as a member of the Bylaws Committee.

Membership Committee – Brandi Dodd announced that she will be stepping down from CAC membership in preparation for the arrival of her new baby. Members extended their congratulations and good wishes. Thanks to Brandi for her leadership as Vice Chair of the CAC for the past two years. We have appreciated her participation and perspective. Gordon indicated that there are three vacancies on the Council for an agency representative, a self advocate, and a family representative. Submit any recommendations you may have to him. Applications will be sent to potential candidates and will be reviewed by Kelly Holt and Mat Bone.


Center for Persons with Disabilities

Consumer Advisory Council (CAC)

June 25, 2014


In attendance: Kelly Holt, Adina Zahradnikova, Laura Anderson, Jim Kreutzberg, Doug Bull, Kim Datwyler, Mat Bone, Jeri Nava, Isaac Gorostieta, Hayley Mitchell, Sonjia Naron, Mary Kava, Stephanie Mathis, Bryce Fifield, Gordon Richins, Jeff Sheen, Shane Johnson, Marilyn Hammond

Participating by telephone: Mathew Bone, Sonjia Naron, Hailey Mitchell, Jeri Nava

Sue Reeves was introduced to the CAC members. Sue is a media specialist at the CPD. She thanked those CAC members who have been participating in the monthly blogs and encouraged others to make suggestions and participate. She offered her assistance in helping members with content or editing. Today Sue will be available in her office at the end of the meeting to take photos of CAC members who were not in attendance at the January meeting.

Kelly Holt, Chair of the Consumer Advisory Council, conducted the meeting. She welcomed participants and introductions were made. Doug Bull and Stephanie Mathis were welcomed as new members to the Council. Doug is a new self advocate representative and Stephanie is the Executive Director of Sego Lily. Sonjia Naron will be retiring from the Board after this meeting. CAC members thanked Sonjia for her service on the Council as a representative from the Southern Utah area. Council members expressed their sympathy at Vickie Brenchley's passing. Vickie served as a family representative on the CPD's Consumer Council for many years. She was a strong advocate for disability issues.

Fundraising Ideas - Shane Johnson provided a handout to CAC members that listed suggestions and tips for planning fundraising events. Participants discussed these together. Some of the CAC members shared fundraising ideas they were exploring within their own communities. Funds raised will go towards funding the Community Investment Fund that is administered through the Council, as well as to provide travel stipends for CAC members. Please feel free to contact Shane if you have new ideas, need help with promotional materials, applications, or have questions.

Community Investment Fund – Kelly Holt reported that there were four nominees for the Community Investment Fund award (Options, NAMI, RISE, Art Access). CAC agency representatives made the nominations. CAC self advocates reviewed the nominations and together made the final decision in choosing a winner. The winning organization for the Community Investment Award for this six month period is RISE, Inc. We will make arrangements to make this presentation to RISE in the near future. The CPD will arrange the publicity and media associated with the presentation.

Bryce reported that he and Mat Bone, CAC Vice Chair, along with others from the CPD, met in Salt Lake City after the January meeting with the Director and Board members of the Traumatic Brain Injury Alliance of Utah to present the Community Investment Award, recognizing them for their excellent work in providing disability advocacy and outreach to people with traumatic brain injury. Other community and local officials were also in attendance at the presentation. The Community Investment Award Program has provided good opportunities for the CAC members to do outreach and community involvement.

In the next few months, Gordon will be in touch with the CAC parent representatives to identify and nominate community organizations for the next Community Investment Award. Self Advocate members will review the nominations and vote on the award recipient before the January meeting.

Laura shared some of the ongoing outcomes from the initial CIF Award that was made to the Discovery Museum. With those funds, the Museum sponsored a special event for children and their families with Autism. The event was a huge success and as a result, similar events continue to be scheduled. They are now collaborating with others around the state and even at national level to sponsor schedule additional inclusive events for individuals with disabilities. Laura will share more information about this in a blog she is writing.

CPD 5-Year Goals and Priorities - Part of the role for the CAC is to provide feedback on CPD program priorities and the 5 year plan. The CPD is just closing out the current fiscal year and gathering the data for the annual progress report. The data will be summarized for CAC members to review at the January meeting.

Bryce gave a brief presentation of the current goals and priorities that are outlined in the CPD 5-year goals. He invited CAC members to ask questions and provide suggestions of other important emerging priorities. The main emphasis of the CPD is focused on community access and community empowerment in five areas: education and training, services, research, technical assistance, and dissemination.

Several members noted that Emergency Preparedness is currently a big focus in communities, particularly as it pertains to educating first responders about interacting with disability populations. Jeff described some of the work done by the CPD in recent years to provide resources and training focusing on emergency preparedness. Many of those resources are still available on the Disability911 website. Jeff Sheen and Marilyn Hammond also provided emergency preparedness trainings for staff of independent living centers in the state.

Committee Reports

Bylaws Committee – There have been no recommended changes to the current bylaws

Program Committee – The program committee will meet to review and evaluate the progress towards meeting the goals of the 5-year plan prior to the January meeting.

Membership Committee – There is currently a opening for a new family representative to replace Vickie Brenchley. Two new members were added to the CAC; Doug Bull (self advocate) and Stephanie Mathis (agency representative).

Fundraising Committee – An update of the fundraising efforts of the CAC were discussed earlier in the meeting.

Social Committee – Vickie Brenchley chaired this committee. A new chair will be selected.

CAC Chair's Report

Kelly Holt reported that she was just notified that the Utah People First group was granted non profit 501(c)3 status.

CPD Director's Report

Bryce reported that funding has been ended for two large CPD programs: The National Children's Study and the Regional Resource Center.

Bryce described a new program at the CPD – Aggies Elevated. Aggies Elevated is a postsecondary program for students with intellectual disabilities that will provide an inclusive campus experience for students transitioning from the special education system. The program received its start-up funding through parent donations. Eight students will participate in this initial year of the program beginning Fall Semester. Congratulations to Jeff Sheen, Shane Johnson, and Sue Reeves who were instrumental in spearheading the program. Sarah Stone has been hired as the new program director. It is anticipated the program will serve as a model for replication on other college campuses.

CReATE – The CReATE is a collaborative program between the CPD and Vocational Rehabilitation in Salt Lake City that refurbishes and repairs donated wheelchairs and devices for reutilization by consumers for the cost of replacement parts. They are able to place an average of 6-8 chairs per month. A long term goal is to make these wheelchairs available to people outside the Wasatch Front by establishing satellite centers, possibly in Price and Roosevelt.

UATF - Marilyn Hammond also reported that the Utah Assistive Technology Foundation provides low interest loans and grants for assistive technology to low income families.

Bryce asked CAC members to save the date of April 18 on their calendars and help spread the word of an upcoming concert targeted specifically for the disability community through a partnership with the Autism Council of Utah, CPD, American Festival Chorus, and the College of Fine Arts. It will be held in the USU Kent Concert Hall. This will be a shortened concert with a Wizard of Oz theme. Tickets will be free to individuals with disabilities and their families. More details will be forthcoming. We will work with schools and advocacy organizations to get the word out.

Kelly Holt thanked CAC members for their attendance and participation in this meeting, and the meeting was adjourned at 1 pm.