The Center for Persons with Disabilities at Utah State University

CAC Council Minutes.

CPD Consumer Advisory Council
January 29, 2014

In attendance:  Kelly Holt, Gordon Richins, Brandi Dodds, Mary Kava, Mat Bone, Isaac Gorostieta, James Kreutzberg, Adina Zahradnikova, Jeri Nava, Bryce Fifield, Marilyn Hammond, Shane Johnson, Jeff Sheen, Sharon Weston
Participating by conference phone:  Kim Datwyler, Vickie Brenchley, Laura Anderson, Hayley Mitchell, Sonia Schugk

As the current Chair of the Consumer Advisory Council, Kelly Holt welcomed participants to the meeting and introductions were made.

Kelly circulated a worksheet inviting CAC members to sign up to participate in writing a Blog for the CPD Website in the coming year.

Fundraising Efforts – Shane Johnson, the Associate Development Officer for the CPD, was present to give Council members some basic ideas for meeting the fundraising goals.  Two handouts were included in the agenda packet. The first described the two fundraising priorities set by the CAC of (1) continued funding for the Community Investment Fund and (2) Council Member Travel Stipends.  The second handout gave basic steps for organizing a restaurant fundraiser.  He discussed this with Council members.  Participants also shared their own fundraising experiences and other ideas that have been successful in their own communities.  Shane explained that the restaurant fundraisers provide a good way to learn about fundraising if you are new to it.  He invited Council members to call him for more information, to discuss other ideas, or with any other questions that may come up.  Bryce assured the Council members that every $ raised from the fundraising efforts will go directly towards funding for the Community Investment Fund and Council Travel Stipends. 

Community Investment Fund – For the benefit of new members, Dr. Fifield gave a brief description of the Community Investment Fund.  The award is presented to a 501(3)c organization that is doing outstanding work in advocating and serving the disability community. The CPD initially provided seed money as start-up funding to launch the Community Investment Fund initiative in 2010.  In order to provide continued funding for the award, the CAC will pursue fundraising activities. 

For the current award, it was agreed that Family and Agency Representatives of the CAC would nominate 501(3)c organizations for the award and provide a brief description of the work of the organization in outreach and service to the disability population. There is $500 available to award for the current year.  It was agreed, that once the nominations were submitted and reviewed, the self advocates of the CAC would vote to determine the winner.  There were 8 nominations made for this competition, including S’plore, Utah Brain Injury Association, Red Rock Center for Independence, Options for Independence, Arts Access, Freedom Riders, Autism Gives, and the Utah Legislative Coalition for People with Disabilities. A brief summary of each of the nominations was provided at this meeting prior to the final vote.  After each of the self advocates cast their vote, it was determined that the Utah Brain Association would receive the $500 award for this period.

Kelly Holt thanked CAC members for their thoughtful input into the nominations and reviews. It was interesting to learn more about the excellent work of organizations around the state that provide services to the disability community. Thanks also to Marilyn Hammond and Gordon Richins for working with the Council members to facilitate the process.  Dr. Fifield stressed the importance of the CAC taking ownership for the Community Investment Fund Initiative.

After each award competition, the Council takes time to review and refine the nomination and award process.  It was the consensus of the group that to help scale back the number of nominations for future competitions, nominations will be made by CAC family representatives and CAC agency representatives in alternating competitions.  The role of self advocates will be to review the nominations and vote to determine the winner.  It was agreed that the agency representatives will submit the nominations for the June award. Marilyn Hammond and Gordon Richins will work to facilitate the nomination and review the process.  Marilyn suggested that each of the nominees receive a letter acknowledging their excellent work.  Bryce will draft a letter to be sent.  Adina suggested that there may be value in inviting future nominees to meet with the CAC either in person, by phone, or SKYPE to describe the work of their organization.

Review of CPD Five Year Plan – Mat Bone, CAC Vice Chair, reported that the CAC Program Committee met on December 5th to review the CPD 5-Year Progress Report of Accomplishments.  He indicated that the CPD had more than exceeded the goals that were set for each of the priority areas. Dr. Fifield provided a brief description of the five goals and the associated accomplishments.  On behalf of the Program Committee, Mat Bone made a motion that the CPD Consumer Advisory Council formally recognize the excellent work of the CPD in meeting these goals and approve the Progress Report as written.  The motion was seconded by Mary Kava and passed unanimously.  Bryce thanked the CAC for their review and endorsement of the progress report.  He pointed out that the input of the CAC in reviewing the goals of the 5 year plan and the associated accomplishments is essential in meeting our responsibilities to the federal funding agency.

Committee Reports – Kelly encouraged new members to choose a committee they would like to work on during the coming year.  Due to time constraints, we will discuss the committee memberships further at the next meeting. Isaac expressed an interest in working with Shane on the fundraising committee.
• Bylaws Committee – The bylaws were amended in 2013.  There have been no further proposed revisions.
• Program Committee – The Program Committee met December 5, 2013, to review the CPD annual progress report.
• Membership Committee – There is one vacancy on the CAC for a self advocate.  Kelly Holt reported that two names have been submitted for consideration.
• Fundraising Committee – It was determined that all members of the CAC would participate on the Fundraising Committee.  Isaac Gorostieta will work with Shane Johnson to chair the work of the committee.
• Social Committee – Vickie Brenchley is the new chair of the committee.  She will contact Sharon about getting the information and materials she will need.

CAC Chair Report – Kelly Holt thanked CAC members for their attendance and participation in the work of the Community Investment Fund Award.  She expressed her gratitude for the opportunity to serve as a member of the CPD Consumer Advisory Group and to serve in the position as Chair of the Council.  The work of the CAC has provided her opportunities to learn new skills and to serve in a leadership position. 

Mary Kava made the motion to adjourn the meeting; seconded by Kim Datwyler.  The CAC will meet again in June.


Center for Persons with Disabilities

Consumer Advisory Council (CAC)

June 25, 2014


In attendance: Kelly Holt, Adina Zahradnikova, Laura Anderson, Jim Kreutzberg, Doug Bull, Kim Datwyler, Mat Bone, Jeri Nava, Isaac Gorostieta, Hayley Mitchell, Sonjia Naron, Mary Kava, Stephanie Mathis, Bryce Fifield, Gordon Richins, Jeff Sheen, Shane Johnson, Marilyn Hammond

Participating by telephone: Mathew Bone, Sonjia Naron, Hailey Mitchell, Jeri Nava

Sue Reeves was introduced to the CAC members. Sue is a media specialist at the CPD. She thanked those CAC members who have been participating in the monthly blogs and encouraged others to make suggestions and participate. She offered her assistance in helping members with content or editing. Today Sue will be available in her office at the end of the meeting to take photos of CAC members who were not in attendance at the January meeting.

Kelly Holt, Chair of the Consumer Advisory Council, conducted the meeting. She welcomed participants and introductions were made. Doug Bull and Stephanie Mathis were welcomed as new members to the Council. Doug is a new self advocate representative and Stephanie is the Executive Director of Sego Lily. Sonjia Naron will be retiring from the Board after this meeting. CAC members thanked Sonjia for her service on the Council as a representative from the Southern Utah area. Council members expressed their sympathy at Vickie Brenchley's passing. Vickie served as a family representative on the CPD's Consumer Council for many years. She was a strong advocate for disability issues.

Fundraising Ideas - Shane Johnson provided a handout to CAC members that listed suggestions and tips for planning fundraising events. Participants discussed these together. Some of the CAC members shared fundraising ideas they were exploring within their own communities. Funds raised will go towards funding the Community Investment Fund that is administered through the Council, as well as to provide travel stipends for CAC members. Please feel free to contact Shane if you have new ideas, need help with promotional materials, applications, or have questions.

Community Investment Fund – Kelly Holt reported that there were four nominees for the Community Investment Fund award (Options, NAMI, RISE, Art Access). CAC agency representatives made the nominations. CAC self advocates reviewed the nominations and together made the final decision in choosing a winner. The winning organization for the Community Investment Award for this six month period is RISE, Inc. We will make arrangements to make this presentation to RISE in the near future. The CPD will arrange the publicity and media associated with the presentation.

Bryce reported that he and Mat Bone, CAC Vice Chair, along with others from the CPD, met in Salt Lake City after the January meeting with the Director and Board members of the Traumatic Brain Injury Alliance of Utah to present the Community Investment Award, recognizing them for their excellent work in providing disability advocacy and outreach to people with traumatic brain injury. Other community and local officials were also in attendance at the presentation. The Community Investment Award Program has provided good opportunities for the CAC members to do outreach and community involvement.

In the next few months, Gordon will be in touch with the CAC parent representatives to identify and nominate community organizations for the next Community Investment Award. Self Advocate members will review the nominations and vote on the award recipient before the January meeting.

Laura shared some of the ongoing outcomes from the initial CIF Award that was made to the Discovery Museum. With those funds, the Museum sponsored a special event for children and their families with Autism. The event was a huge success and as a result, similar events continue to be scheduled. They are now collaborating with others around the state and even at national level to sponsor schedule additional inclusive events for individuals with disabilities. Laura will share more information about this in a blog she is writing.

CPD 5-Year Goals and Priorities - Part of the role for the CAC is to provide feedback on CPD program priorities and the 5 year plan. The CPD is just closing out the current fiscal year and gathering the data for the annual progress report. The data will be summarized for CAC members to review at the January meeting.

Bryce gave a brief presentation of the current goals and priorities that are outlined in the CPD 5-year goals. He invited CAC members to ask questions and provide suggestions of other important emerging priorities. The main emphasis of the CPD is focused on community access and community empowerment in five areas: education and training, services, research, technical assistance, and dissemination.

Several members noted that Emergency Preparedness is currently a big focus in communities, particularly as it pertains to educating first responders about interacting with disability populations. Jeff described some of the work done by the CPD in recent years to provide resources and training focusing on emergency preparedness. Many of those resources are still available on the Disability911 website. Jeff Sheen and Marilyn Hammond also provided emergency preparedness trainings for staff of independent living centers in the state.

Committee Reports

Bylaws Committee – There have been no recommended changes to the current bylaws

Program Committee – The program committee will meet to review and evaluate the progress towards meeting the goals of the 5-year plan prior to the January meeting.

Membership Committee – There is currently a opening for a new family representative to replace Vickie Brenchley. Two new members were added to the CAC; Doug Bull (self advocate) and Stephanie Mathis (agency representative).

Fundraising Committee – An update of the fundraising efforts of the CAC were discussed earlier in the meeting.

Social Committee – Vickie Brenchley chaired this committee. A new chair will be selected.

CAC Chair's Report

Kelly Holt reported that she was just notified that the Utah People First group was granted non profit 501(c)3 status.

CPD Director's Report

Bryce reported that funding has been ended for two large CPD programs: The National Children's Study and the Regional Resource Center.

Bryce described a new program at the CPD – Aggies Elevated. Aggies Elevated is a postsecondary program for students with intellectual disabilities that will provide an inclusive campus experience for students transitioning from the special education system. The program received its start-up funding through parent donations. Eight students will participate in this initial year of the program beginning Fall Semester. Congratulations to Jeff Sheen, Shane Johnson, and Sue Reeves who were instrumental in spearheading the program. Sarah Stone has been hired as the new program director. It is anticipated the program will serve as a model for replication on other college campuses.

CReATE – The CReATE is a collaborative program between the CPD and Vocational Rehabilitation in Salt Lake City that refurbishes and repairs donated wheelchairs and devices for reutilization by consumers for the cost of replacement parts. They are able to place an average of 6-8 chairs per month. A long term goal is to make these wheelchairs available to people outside the Wasatch Front by establishing satellite centers, possibly in Price and Roosevelt.

UATF - Marilyn Hammond also reported that the Utah Assistive Technology Foundation provides low interest loans and grants for assistive technology to low income families.

Bryce asked CAC members to save the date of April 18 on their calendars and help spread the word of an upcoming concert targeted specifically for the disability community through a partnership with the Autism Council of Utah, CPD, American Festival Chorus, and the College of Fine Arts. It will be held in the USU Kent Concert Hall. This will be a shortened concert with a Wizard of Oz theme. Tickets will be free to individuals with disabilities and their families. More details will be forthcoming. We will work with schools and advocacy organizations to get the word out.

Kelly Holt thanked CAC members for their attendance and participation in this meeting, and the meeting was adjourned at 1 pm.